Just another Christian Mommy

 I haven't updated recently and I want to catch everyone who may not be on my facebook up!  My last admission was rough on my physically and even more so emotionally which I think made dealing with the physical stuff harder. I was in tears a few times which is never good because then you get the, are you stressed talk from the doctors like that is the cause of everything......  Thing is I was on the medications or have been on the combo of meds that should have made me better... I was supposed to be better yet my blood cortisol was still virtually undetectable! my GI thought it was an absorption issue but he couldn't convince the endocrinologists at memorial to keep me on iv steroids because most people don't need that. Well guess what if you google iv Hydrocortif and Adrenal insufficiency  you can find so many that need this treatment to feel normal and you can find so many on the pill form that cant not function. The Endos at memorial were okay with leaving me...

  So I definitely don't look better or feel better. I felt better at first as they gave me high doses of IV steriods an fluids then I started swelling yesterday and now it hurts to hold my phone up move. Emotionally I am all over the place from the pain, the way I look, the loneliness, and of course the steriods. I was in tears several times yesterday mostly from the pain.  I was in much worse shape than I thought I was. The doctors said I will be here until begining of next week at least. The crisis happened because my body wasn't absorbing my oral steriods. Thankfully there are many types of steriods so we can try another one. Right now we have to get my body's levels out of the danger zone. When your body doesn't have enough cortisol you can die. When your body is too low it can't handle physical stress, or sickness. Your cortisol helps to regulate all sorts of important bodily functions including blood pressure, your gi tract, blood sugar,reproduction and more. ...

I have been having trouble with dehydration ever since thy removed my PICC line. This past week i was in and out of the er and my primary decided I needed a PICC for hydration. On Friday the paper work didnt get done in time so that left me on my own over the weekend. I live in Southern California and the heat ( don’t have air, cant afford a window unit) made things so much worse. I was in the er friday for D50, fluids and pain meds. D50 is IV dextrose aka SUGAR. Mine tends to drop quickly when I’m having trouble. I was hoping i could make it to Monday so i could just get my PICC and avoid the er. Why do I want to avoid the er? It’s full of sick people and people with COVID 19... I have to take daily steroids which leaves me immune compromised. I felt bad Saturday and napped and laid on the couch. Sunday morning I still felt crummy but decide to do my hair and makeup for church zoom to see if that made me feel better. I really think being positive is the only way I am making it through...