Day 5 of crisis

-

 



So I definitely don't look better or feel better. I felt better at first as they gave me high doses of IV steriods an fluids then I started swelling yesterday and now it hurts to hold my phone up move. Emotionally I am all over the place from the pain, the way I look, the loneliness, and of course the steriods. I was in tears several times yesterday mostly from the pain. 

I was in much worse shape than I thought I was. The doctors said I will be here until begining of next week at least. The crisis happened because my body wasn't absorbing my oral steriods. Thankfully there are many types of steriods so we can try another one. Right now we have to get my body's levels out of the danger zone.

When your body doesn't have enough cortisol you can die. When your body is too low it can't handle physical stress, or sickness. Your cortisol helps to regulate all sorts of important bodily functions including blood pressure, your gi tract, blood sugar,reproduction and more. My level was .5 on Sunday and for the last month while on meds has been 1.5 to .9.
Currently in the hospital my days are filled with steroids every 12 hours, stomach injections every 8 hours, vitals every 6, blood sugar checks every four, continuous feeds, fluids, and cardiac monitoring. There is an alarm on the bed so I can not try to get up alone because I am a fall risk.



That’s my med IV, I have another one for fluids, also my lovely fall risk, allergy ( to many to rite on the band) and regular band. They ran out of adult dressings so i got one with cute teddy bears from pens which makes me smile I always fine one thing to make me smile.

The plan as I understand it is to get my cortisol levels up and stable and get me to an oral steroid that my body will absorbe. Then they will place a PICC and remove my NJ and surgically play my tube with an J extension.  I think the NJ is already messing with my voice so i am happy to have it gone. It was supposed to be replaces the following week anyway so I am happy they can do it while I am here and hopefully the damage is temporary. 

That’s all I have for now, thank you for all the love! 





Remember if you are looking to share your story through amazing jewelry consider shopping through my site which helps support me! BUY ORIGAMIOWLHERE

















Comments

Post a Comment

Popular posts from this blog

How to make a Blessing Bag

-
Image
Why? Mathew 6:3-4   But when you give to the needy, do not let your left hand know what your right hand is doing,   so that your giving may be in secret. Then your Father, who sees what is done in secret, will reward you.
Read more

My diagnosis so far in more details

-
Image
 I’ve mentioned Addison’s before but I want to go into more details on what exactly this is. My body stopped making enough of stress hormone called cortisol. Those that know know the last two years I have have to fight for my youngest in what was a never ending battle to get him medically stable. Earlier this year he had a central line and was in and out of the PICU. I find it kind of funny for all things to not work in my body is that fact it’s not making the stress hormone. I joke with my doctors that I used my life supply already!  So cortisol is something my body produces in response to physical and emotion stress on your body. Without it you can go into acres all crisis and slip into a coma and die. It’s not to be taken lightly. Things I have experienced this summer they have linked to my low cortisol levels are, nausea, rapid weight loss ( sounds great but actually miserable) hypoglycemia, hypotension, tachycardia, vommiting, abdominal pain, chest pressure, weak limbs, f...
Read more

God is like a pencil sharpener

-
While I was driving my 3rd grade son to his 2nd day of school he looked at his new sharpener and came up with what I think is a great analogy. Children can just blow your mind away with things that they say. What would your child say God is like?
Read more